Just found out how much our co-pay is with the RSV shot (synagis)... OUCH! Talk about pharmaceuticals getting rich!For those of you that don't know what Synagis is, it is used in the prevention of respiratory syncytial virus (RSV) infections. It is recommended for infants that are at high-risk because of prematurity or other medical problems such as congenital heart disease, or SMA.
All the doctors were "yes, if you get approved, get. this. shot". What they don't tell you is how much it is going to cost. I mean we aren't in the dog house poor or anything, but we are trying to save for a new home that will fit the needs of a special needs boy. So it was coming down to a shot (where he still may get RSV) or a home (where said boy will live and flourish...) After talking with my son's nurse and explaining I can do one or the other but not both, and that I was leaning towards not doing the shot she found some funding for me. So we are ok till at least January, then hopefully the nurse can help us find more funding.
$3000 per shot, and Declan needs 5. Our insurance will cover 80%. That's $600 a month we need to cover. Talk about highway robbery, and at Christmas too! Luckily the funding the nurse helped us get drops that copay down to $50, till mid January. So if we can get funding for February and March we should be good till next year.. and I don't even want to think of next year yet.
So do you want to know what much this magic shot cost before insurance? This is based on Declan's weight of 15lbs.
Our shot is ordered and we are planning on getting it next week.
If you want to know more about this shot you can google it or go HERE the dark side of Synagis if you want to be talked out of it...
*Just a note to friends and family we are out on the gift giving this year, but we wish you well.*
I hope this shot is worth it. We wish you the best and if you are following the path of the SMA journey we wish you luck. May we find a cure soon!
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| Declan went to the voting booth with us. His first vote! |
Man! That's awful.
ReplyDeleteWell, we're out on gift giving pretty much this year too...seeing as we are ultra poor, Jeff doesn't work and I have a part time job - which doesn't even cover our rent. We can have a great gift-free Christmas this year together instead, lets come up with some fun activities ideas instead! Singing carols around the piano, anyone? Start practicing so you can play for us, Meg. :)
Grandma's little angel. Declan, you are a precious child!
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